PolyMVA Website – Encouraging Patients to Ignore their Oncologist
The PolyMVA survivors website is advising cancer patients to ignore their oncologist, to refuse chemotherapy and/or radiotherapy and to choose an alternative cancer treatment instead. I do hope this PolyMVA group are basing their approach on the best possible evidence. Let’s see… Apparently, “POLY MVA has been scientifically designed to CORRECT DNA BREAKDOWNS and return the damaged cell to normal cellular function”. Oh good – at least it’s been scientifically designed. Designed by whom though? “This product was developed by Dr. Merrill Garnett, a highly regarded biochemist, who has been conducting research since 1959 with the objective of creating an electronic frequency specificity to restore the DNA exchange energy pathway”. Excellent. Who is Merrill Garnett? “Dr. Garnett is a former naval dentist who took up medical research in 1959″. And what, precisely, is a ‘DNA exchange energy pathway’? Well, it is something that gives you two hits on google* – one is the PolyMVA survivors website and one is a PDF written by someone called Joe Demers who “would like to share with you an alternative cancer treatment protocol”. In other words, the phrase has been made up by the inventor of a dietary supplement. It is, in all probability, complete bollocks – designed to give the appearance of scienciness and to baffle the layperson.
There is a section of this page: cancer decisions, that looks at the evidence for PolyMVA and is titled “Where’s the Proof?” – the evidence is very thin indeed. Quite apart from the fact that what evidence is available is being misrepresented by the PolyMVA survivors site. A talk at a symposium is described as a “clinical study” by the PolyMVA survivors site and they rely heavily on animal data – from a study that they fail to cite, with a nameless author, that does not appear in any Pubmed-indexed journal (nor does it appear anywhere else, except for this single webpage – according to the author of the cancer decisions site).
It strikes me that the PolyMVA website is run along the same lines as Matthias Rath’s South African AIDS business.
————————————————————————————————————
A bit more linkage: polymvasurvivors - PDF’d for posterity, because this is the bit that most pissed me off. Website: http://www.polymvasurvivors.com/. More on Poly MVA from the American Cancer Society. My dodgy-supplements-for-serious-diseases post; the original cancer drugs post. The online reporting form that I am (over-)using to take on PolyMVA.
*Very nearly a googlewhack - 2 hits for bullshitting about DNA energy.
Edited to Add: Google’s motto is “Don’t be Evil” but they seem to be having trouble living up to that ideal. Jon at Holford Watch has posted on Cancer Quackery in Google ads.
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jdc325 said,
September 24, 2008 at 10:02 am
Google’s motto is “Don’t be Evil” but they seem to be having trouble living up to that ideal. Jon at Holford Watch has posted on Cancer Quackery in Google ads here.
jdc325 said,
November 27, 2008 at 12:46 pm
They’re here too. Seemingly concentrating their efforts on advertising PolyMVA for prostate cancer and pets.
Prostate cancer.
Blogging on cancer – page four of seven is here.
Pets.
Cost = $150 per 8 ounce bottle and a bottle lasts from six days to “over six months” – depending on what you are using it for. $150 for six days’ supply of an unproven remedy seems a little steep to me, but apparently it’s all because of the price of palladium.
FAQ.
Deb O. said,
April 12, 2009 at 3:54 am
How much time have you spent INTERVIEWING the people who REVERSED their cancer with Poly MVA??…the survivor site has phone numbers, emails etc….I am sure they would be happy to be interviewed in person even….and at that point you would be able to see their medical records, blood markers etc. first hand…You definitely sound like somebody who is “talking through your hat”….As they say “there is no excuse for ignorance”…go to the site and start interviewing….and after that, write a book about how POLY MVA does nothing…I seriously challenge you to go to the SOURCE OF THE TRUTH…..
jdc325 said,
April 13, 2009 at 6:49 pm
It just goes to show you can’t be too careful.
I’m not sure how my collecting anecdotes would be helpful. If Poly MVA is a cure for cancer then it should be tested. If it is shown by properly designed tests to work then it should be provided by medical professionals as and when it is appropriate for them to do so.
By the way, do you have any comment on the way that those promoting Poly MVA use what little evidence currently exists? [A talk at a symposium is described as a “clinical study” by the PolyMVA survivors site and they rely heavily on animal data - from a study that they fail to cite, with a nameless author, that does not appear in any Pubmed-indexed journal.]
Deb O. said,
April 14, 2009 at 12:39 am
You need to do more web search…there are doctors already using this product and they bublish the results…Like I say, you are talking through your hat!!..Poly MVA has a product that is being patented….which means, oncologists will soon be ALLOWED by the FDA to use it for a cancer therapy…In the meantime OTC Poly is available as a supplement…(How come you do not know that?)..Poly MVA is concentrated, bio-available nutrition…the MVA stands for MINERALS…VITAMINS AND AMINO ACIDS…The first thing you should understand is that Poly makes a big difference…The first rule of Medicine is “DO NO HARM!” which Minerals, vitamins and amino acids don’t!…Poly and other complimentary supplements provide NUTRITION which assists the body in making healthy blood cells which in turn strengthens the immune system which then protects chemo/radiation patients from infections..NO place on the site does it say that this company ecourages people to ignore their oncologist ..as a matter of fact, they work WITH oncologists!…How come you did not mention that?…However, many people quit chemo and radiation and just use the POLY..They have their own reasons for doing so..Some are told to ,basically, GO HOME AND DIE because, the treatments were not working and for many, they would likely die of a virus, pneumonia etc BECAUSE they were NOT making enough blood cells to RESIST INFECTION…The biggest point that you are missing is that WHEN the body has EVERYTHING it NEEDS, it will HEAL itself and that is the purpose of good sound nutrition…and that in turn is WHY the people who testify on the survivor site keep saying “Poly MVA cured my cancer”….technically it did not, it provided the body with necessary nutrition so that the BODY COULD HEAL ITSELF….Nobody is asking you to collect anecdotes, I merely asked you to talk to the people who have used the Poly and verify that their cancer disappeared..They have medical records for that you know….If you care about truth, write and or talk to the survivors..I think you are just unable to admit that you may have a misconception of the Poly….when it is your turn and it is YOUR LIFE, you will be more open minded and willing to talk to the people who had awsome success with nutrional therapy… (chances are getting close to 50/50 chance that YOU will have cancer) think about that…Have a consious and stop putting this product down….As far as studies go…WHERE HAVE YOU BEEN?????….Alot of cancer patients who use Poly MVA are part of an ongoing study…when they sign up for the study, they are able to buy the product for less money…..DO YOU HOMEWORK GUY!!…Your words in your blog may have cost somebodys life, just because they took YOUR word for it..talk to the people who SWEAR that their cancers were reversed..What better HUMAN STUDY exists for any product than the RESULTS AND MEDICAL REPORTS OF THE PEOPLE WHO USED IT WITH SUCCESS???..I hope whoever reads this will make a decision based on the the truth you acquire from the SURVIVORS who are ready and willing to talk to you..I know one of these cancer survivors personally…She was told that her cancer was too advanced,and that she would likely not live but a few weeks…So she tried Poly mVA and she is now cancer free after almost 5 years….http://www.polymvasurvivors.com/testimonials.html….This is a link to human study..One based on people not animals..http://www.polymva.com/pdf/LIEBERMAN-TOWNSENDARTICLE6-06.pdf..the next link has 19 different links on published articles/studies/abstracts..at the bottom of each page is MORE supporting data listed that is not related to the Poly MVA sit….http://www.polymvasurvivors.com/scientific_research.html..Go to the site and check it out…As for your comment and I quote…”Poly MVA use what little evidence currently exists? [A talk at a symposium is described as a “clinical study” by the PolyMVA survivors site and they rely heavily on animal data - from a study that they fail to cite, with a nameless author, that does not appear in any Pubmed-indexed journal.]“..I am wondering IF you can direct me to ANY medical studies on drugs that DID NOT begin with trial on ANIMALS??…For myself, I would hesitate to use cancer causing chemical and cancer causing radiation to cure cancer, I just cannot get that to make sense!!…so using that same scenario, If I should somehow get poisoned, I could take another poison and that would cure me of the first poison??….Thanks
How to Get Six Pack Fast said,
April 15, 2009 at 1:42 pm
I noticed that this is not the first time you write about this topic. Why have you chosen it again?
Deb O. said,
April 15, 2009 at 2:04 pm
Lets see….the subject for this blog is “PolyMVA Website – Encouraging Patients to Ignore their Oncologist”….I would like people to find their own truth with an open mind rather than make a clouded decision by the opinions of jdc325…Hopefully that answers the quetion…
jdc325 said,
April 15, 2009 at 4:22 pm
“You need to do more web search…there are doctors already using this product and they bublish the results”
As anecedata? Or as data from properly controlled trials?
“Poly MVA has a product that is being patented….which means, oncologists will soon be ALLOWED by the FDA to use it for a cancer therapy”
Really? So they’ve done the properly controlled trials then? Can we see the methods and results of these trials?
“The first thing you should understand is that Poly makes a big difference…The first rule of Medicine is “DO NO HARM!” which Minerals, vitamins and amino acids don’t!…”
The potential adverse effects of vitamins, minerals and amino acids are well known. I note that the mineral is palladium, which is not necessary for human health.
“Poly and other complimentary supplements provide NUTRITION”
Not really true, given that palladium is not necessary for human health.
“NO place on the site does it say that this company ecourages people to ignore their oncologist ..as a matter of fact, they work WITH oncologists!…How come you did not mention that?”
Bullshit. I shall now quote directly from the PDF I linked to in my blog post:
Try reading blog posts and the linked sites before you try to deny that a website has given particular advice.
“WHEN the body has EVERYTHING it NEEDS, it will HEAL itself”
Excellent. An example of the WTF fallacy. Linky.
“Nobody is asking you to collect anecdotes, I merely asked you to talk to the people who have used the Poly and verify that their cancer disappeared”
Um, do you know what an anecdote is?
“when it is your turn and it is YOUR LIFE, you will be more open minded and willing to talk to the people who had awsome success with nutrional therapy…”
Ah, the “open-minded” gambit. You may find this video interesting. Despite your confidence in your own predictions, I have to tell you that it is unlikely that I would choose unevidenced treatments if I were seriously ill. I prefer my medicine evidence-based, thank you.
“What better HUMAN STUDY exists for any product than the RESULTS AND MEDICAL REPORTS OF THE PEOPLE WHO USED IT WITH SUCCESS???”
An RCT.
I note that rather than answer my question about the way the website presents the evidence, you have posed an irrelevant question of your own. Of course animal data is usually a starting point. But it should not be assumed that what works in animals works in humans. This is why (as a society) we conduct human trials too. And we use controls and blinding to try to eliminate bias as far as possible. This is why I keep referring to properly conducted trials.
Deb O. said,
April 15, 2009 at 5:00 pm
My gosh you are out there…This product will be brought before the FDA…not that the FDA necessarily cares about what is actually good for human consumption…BUT FDA standards require the makers to jump through the hoops…So if it measures up to the FDA it will be approved as a cancer therapy, will it not?…In which case, it will blow your research on this product out of the water…your link to video…sheesh!…what a joke….WHERE are your concrete links?….anybody can do U Tube…
ADMIN EDIT: “So if it measures up to the FDA it will be approved as a cancer therapy, will it not?…In which case, it will blow your research on this product out of the water..” If it’s properly tested and found to work then I will have no problem with its use as a cancer therapy. Has it been properly tested and found to work? Or are we playing the “what if” game?
“your link to video…sheesh!…what a joke….WHERE are your concrete links?….anybody can do U Tube…” The video link was a specific response to your appeal for open-mindedness on my part. I fail to see how anyone could have assumed that it was supposed to be concrete evidence of anything.
I can only assume that you are deliberately trolling.
Deb O. said,
April 15, 2009 at 6:03 pm
Honestly, I just want you back off and NOT discourage the people who are looking for hope..People need to take charge of their own cancer treatment decisions…poly is an option…in response to your question/comment…”If it’s properly tested and found to work then I will have no problem with its use as a cancer therapy. Has it been properly tested and found to work? Or are we playing the “what if” game?”…ummmm, hellooo…The people who have and are using just the OTC version of Poly have documented medical testing, that they have beat the averages while taking chemo radiation and poly or whether even the poly alone..Your little video kept stating “examine the evidence” because CRITICAL THINKING is a doorway to being open minded…The goal of this therapy is to INSURE that all NEWLY developing tissue/blood cells will be left unharmed during cancer treatment..Hence, preventing the patient from DYING of secondary infections and SECONDARY CANCERS which are indeed caused by traditional cancer therapies..I should think that EVERYBODY would be jumping up and down that there MAY be even a REMOTE possiblity that a healthy cancer treatment is in the works!!…Yes, I agree it is expensive and so is the RESEARCH/patents/hoops presented by the FDA…The cost however, is not even close to the cost of chemo/radiation treatments which runs into MILLIONS for just one cancer patient…BUT people can obviously afford it as it is indeed selling…and after being in contact with the patients who have used it, hearing their story first hand, seeing their med records/blood counts and final CLEAN BILL OF HEALTH even years after, I gotta say…Poly doesn’t scare me even a little…This will be my last post jdc, I have alot of people depending on me!..Best I get back on task and quit wasting my time…Take care!..I wish you LOTS OF GOOD HEALTH because everybody deserves a LIFETIME!
ADMIN EDIT: “…ummmm, hellooo…The people who have and are using just the OTC version of Poly have documented medical testing”
If you have a link to peer-reviewed, publicly published research documenting that Poly MVA works then feel free to post that link here.
“The goal of this therapy is to INSURE that all NEWLY developing tissue/blood cells will be left unharmed during cancer treatment..”
And does it achieve this goal? Has this been documented? Where is the reliable evidence that this is the case? You have yet to link to any evidence at all regarding Poly MVA.
survivor7554 said,
April 17, 2009 at 3:49 pm
wow! I had no trouble finding the links in this blog and have read the survivor testimonials. Have already received response. Personally, I feel I could read scientific data and still not know if it actually worked for somebody. I would rather get the information from somebody who could tell me first hand how it worked and what the results were over time. I am shocked that you do not consider the cancer survivors testimony “evidence”. The fact exists that many many people are swearing by this product and wish to help other victims find an extended life. In my mind, that means alot! The contact has shared the test results and even offered to scan and email their blood work and physician notes. I am still contacting more people from the site so I can make an informed decision. I am glad I ran into your blog. Thanks for leading me to the Poly MVA site!
jdc325 said,
April 17, 2009 at 7:50 pm
“I am shocked that you do not consider the cancer survivors testimony “evidence”.”
I do consider it to be evidence – it is anecdotal evidence (which is notoriously unreliable).
“The fact exists that many many people are swearing by this product and wish to help other victims find an extended life.”
Many people will swear that all manner of things are true. Here’s just one example of something that has a fair number of supporters: The Flat Earth Society (“Deprogramming the masses since 1547, the Flat Earth Society has long been dedicated to the Flat Earth principles which define our organization”). Relying on the fact that many people swear by something is not always a great idea. You may like to try reading Nizkor.
Here’s an example that Nizkor uses: “Jill and Jane have some concerns that the rules their sorority has set are racist in character. Since Jill is a decent person, she brings her concerns up in the next meeting. The president of the sorority assures her that there is nothing wrong with the rules, since the majority of the sisters like them.” (I’ve seen a similar question posed elsewhere: if a majority of voters in a US state support slavery, does that make slavery right?)
“Personally, I feel I could read scientific data and still not know if it actually worked for somebody.”
Not sure what your point is here. If it is that scientific evidence is too hard to understand then you may be underestimating yourself – or overestimating how difficult it is to understand scientific evidence if you are sufficiently motivated.
“I would rather get the information from somebody who could tell me first hand how it worked and what the results were over time.”
Well, I could tell you all sorts of things first-hand – but how would you know if my first-hand evidence was reliable? If I had been subject to cognitive bias, then my first-hand evidence would be skewed. This is why scientists conduct double-blind placebo-controlled trials on drugs – to try to minimise or eliminate bias.
“I had no trouble finding the links in this blog”
Excellent – perhaps you would like to comment on the PDF link where the website I am writing about tells people to ignore their oncologist and why they “SHOULD NOT choose Chemotherapy & Radiation”? (Bizarrely, Deb O claimed this encouragement to ignore ones oncologist and refuse chemo and radiation did not exist.)
By the way, do you have any comment on the way that those promoting Poly MVA use what little evidence currently exists? I asked Deb O about this, but she failed to give an opinion.
“I am glad I ran into your blog. Thanks for leading me to the Poly MVA site!”
Forgive me for doubting that you found the Poly MVA site via my blog, but I find that assertion surprising indeed. From your comments here and your chosen username, you sound like a true believer.
Constantina said,
May 3, 2009 at 11:23 am
I just went through your conversation and all I can say is that there might not be proven trials that polymva works but for the rest of the chemotherapy drugs there are trials and a loot of scary evidence that they do not work! You dont need a lot of words to understand that, if you had cnacer and the doctor said try this drug and you will have a dozen of freaking side effects destrying your body with a 3% of success, what does this translate to you??? To me it translated like ‘we have proven this shit doesn’t work’ so please let people hope and spent their money and life on whatever they want, anyway they don’t buy drugs on polymva they buy hope in bottles
jdc325 said,
May 3, 2009 at 1:40 pm
Please can you tell me where the 3% chance of success figure comes from?
I’ve checked on the websites for the Office for National Statistics and for Cancer Research UK and I can’t find figures to back up your 3% claim.
Cancer Research UK.
ONS.
Constantina said,
May 3, 2009 at 1:42 pm
check for kidney cancer then
Admin edit: That’s interesting – your earlier comment seemed to refer to all cancers. Are you changing your claim to refer specifically to kidney cancer? Looking at the ONS stats on kidney cancer, it seems that the 5-year survival rate is 40-45%. The Cancer Research UK site gives one-year survival rates for kidney cancer, which have improved from around 45% in the 1970s to 65-68% in the period covering 2000/01. Are you sure you meant kidney cancer?
You seem not to have read the information available via my links and you have not told me where the 3% figure comes from. I’m genuinely interested in the source for this figure and would be grateful if you could supply it.
Constantina said,
May 3, 2009 at 1:56 pm
And please all of you, this is such a sensitive matter, you should not take it that personally especially if it doesn’t affect you in person. ANd let’s say you are found with a malignant fast spreading desease and doctros give you their scientifically proven drugs and you go through all the hell no matter what , keeping faithfully to your doctors suggestions, and there comes the day that you go back to find out that those drugs managed nothing at all, what are you going to do?? Sit and wait the day to die because nothing else is scientificalle proven????? Trust me, You’ll try things even if in a corner of your head a voice tells you that people take advantage of you, but even with the’scientifically proven drugs’ people and pharmacetical companies giants like wolves take advantage of you, it is in noones interest that you live on nodrugs, no one is interested in curing you but just in taking you money
jdc325 said,
May 3, 2009 at 2:15 pm
“it is in noones interest that you live on nodrugs, no one is interested in curing you but just in taking you money”
That is something I believe to be not simply untrue, but also offensive to those working in the fields of cancer research and patient care.
Constantina said,
May 3, 2009 at 2:33 pm
It is offensive and I hope someone would start taking it seriously! You believe it is untrue, you dont know that it is! Even if it is untrue, my opinio is that they should start working better and finding things that really work because all i can hear is words and promises but no actions or proofs , in my family there is not a single person who has been cured of cancer, and we have quite a lot of insetences, so please ,I am living it, you are just reading it
Admin: you don’t seem to know whether your claim is true or false and you don’t seem to care. This is the hallmark of a bullshitter. [See
Frankfurt.]
Deb O. said,
May 3, 2009 at 2:44 pm
Just thought I would present some “evidence” which I witnessed for myself, with a human who used Poly in the final stages of bone cancer,which is WHERE BLOOD CELLS ARE MADE..My best friend was diagnosed just 2 months ago as being in the final stages of bone cancer…She had pain in her leg and it was her only symptom, unfortunately, her cancer was advanced…Once she had the proper pain management she felt great…she was told she would likely live up to a year without treatment and hopefully up to 5 years WITH treatment…The day after her FIRST radiation treatment, she was sick,…pneumonia alreadly…She was treated for the pneumonia and unable to have radiation for another week, when her bloodwork improved…she had radiation twice more, she became sick again…Again the wait for her blood work to improve…then radiation again for several days then blood work was poor and again the long wait..This scenario continued..I went to visit her on the afternoon of April 14th, she said to me “I am full of shit! Like you didn’t know that!” and then she laughed…She was in good spirits but complained of a tummy ache which had been diagnosed as severe constipation due to morphine..She was in good spirits looking forward to her dose of Milk of Mag..The next morning, on April 15 she was scheduled for radiation and chemo…On the morning of April 15th she was found UNRESPONSIVE and the family was called in and she was placed in Hospice, they said she had only a few hours to live, a couple days at most…Turns out she had MORE than just constipation..She had a HUGE abcess in her colon which was leaking infection into her abdomin..The doctors explained that Morphine had caused the constipation and radiation had killed her white cells hence, an infection had started and her immune system could not fight the infection due to the lack of cells..They explained to the family that they did not expect she would ever wake up from her coma and would die in a few hours..The family was told that they could fly her too Minneapolis for surgery to “clean up” her colon but her chances were very slim of surviving the surgery..Based on what the doctor said the family opted not to attempt the surgery and let nature take its course and try keep her comfortable..BUT then she WOKE UP that same night and when her children gave her the report she said “I am not dying at least not yet” and stated that she did have alot of pain in her abdomen and back and so began a series of increased doseages of morphine which of course would ADD to the CONSTIPATION ..She was hungry and thirsty but received only sips of water and sips of clear fluids and occasional bites of jello due to the perforation..She remained alert with long intervals of sleep due to the morphine but was easily awakened when moved or talked to..Doctors had determined her kidneys were shutting down, her liver was in bad shape also and her blood testing showed poor blood cell production..She was NOT ALLOWED food due to the colon perforation so her body had NOTHING WITH WHICH TO MAKE NEW BLOOD CELLS or energy for that matter..I bought the Poly MVA, gave it to her children and she took 6 tsp the first day..Her daughters did not tell dorctors and nurses that they were giving her Poly…By that evening she was sitting up in bed, talking and laughing and stated she felt much better!..The next morning her blood work was MUCH improved and the medical staff was AMAZED AND CHEERING but confused by the improvement and stated “I have not seen blood work like this from anybody in your moms condition..typically, it just becomes increasingly worse!”..Now the nurses are telling her that she is their “miracle lady”..She continued to take the poly and by the end of her first week in hospice her test results continued to improve everyday..Kidneys much improved, liver function much improved, she was able to have a BM for the first time in over a week and she was making blood cells like crazy..At this time doctors determined that the colon perforation must have healed because she was now able to pass gas, which could not happen if it was still perforated..They were impressed but stated that she was “still not out of the woods”..Then she had two bad days of heart burn and nausea and her kids were afraid to give her the poly for fear she would vomit and aspirate in her sleep..On the morning of the third day she had such horrific pain that the morphine was increased to a point that she only woke up when moved..At this time, she was unable to wake up to take the Poly..Blood work, body funtions all took a dive and the very best friend I had in this world passed away..She was a whopping 62 years old…All I have to say is that I wish she had gotten the Poly MVA before she had radiation..It very likely would have kept her body making blood cells and that means this SCENARIO might have been prevented.. because she would have had A STRENGTHENED IMMUNE SYSTEM JUST LIKE YOU READ ABOUT IN THE Poly MVAA SURVIVORS TESTIMONIES..And so this turned out the SAME WAY it does for SOO many GOOD PEOPLE..My friend DID NOT DIE OF CANCER..My best friend died of THE EFFECTS OF RADIATION..As hind sight is 20/20, chances are she would still be here if she had done NOTHING.. But she FOLLOWED THE RECOMENDATIONS OF HER DOCTOR AND ONCOLOGIST..Her family and I are grateful to Poly MVA for giving her another 16 days of life and a better quality of life when doctors said she had “a few hours/a couple days at most to live”..In a nutshell, the Poly increased blood cell production, strengthened her immune system, improved kidney and liver function, improved mental clarity and provided an overall feeling of wellbeing and provided energy which gave my friend a prolonged and better quality of life in her final days..NOW the family has told the medical staff and countless others about what they witnessed with POLY MVA and NOW we have a small army of believers/promoters in our little corner of the world!..Our only regret is that she did not get it sooner..
Constantina said,
May 3, 2009 at 2:55 pm
Thanks for the hope you just passed to me , I am so sorry for your friend..:(
Deb O. said,
May 3, 2009 at 3:04 pm
Thank you Constantina..We will bury her tomorrow..Do not be afraid of the POLY..Make contact with with AMARC and with the people on the survivors site, they will be a great source of information and support for you..AMARC has some financial groups that provide donations if you have trouble paying for the Poly..If there is anything I can do please send me your email and I will contact you offline and give you contact info for an AWSOME SURVIVOR AND POLY USER..Hang in girl..
Constantina said,
May 3, 2009 at 3:31 pm
Thanks you so much for all your kind help an support,I lost on monday my beloved aunt from bone cancer of unknown source, I am familiar with the pain, but hang on and be brave.. I would really like to have information from you but I really don’t know how to give you my email address with out exposing it to everyone
Constantina said,
May 3, 2009 at 4:40 pm
As a simple answer to the admin
My oncologist provided me with the rates I have just stated above, I am a 5-year survivor but that is completely on nodrugs, the cut and wait option as doctors like to call it, most of kidney cancer cases do not metastasize or even reoccur that is the reason why doctors sit back and wait, well I was like for five years as well, but on the sixth year I had reoccurence and know I have metastases tot he liver, I visited one of the best hospitals in england The Royal Mrsden Hospital in London, and claimed opinion of one of the best oncologist on the subject which I dont know If I should name, and all he said is that my desease is not curable and all they can do is administer me a drug for some time as to give me a few more months of life, I dont know where online I can give you the results because my information is taken from the best of the professional on kidney cancer. Also, 3% is for poor prognosis metastasized patients in which I belong, I AM NOT TALKING BULLSHIT, SORRY
Panayiota said,
May 3, 2009 at 4:59 pm
The only thing I would like to emphasise or critisise on this discussion, is that, I know you are an atheist( to jdc325) but you should really be more kind to the feelings of the others. Especially people that suffer something that you couldn’t even imagine how it feels. At the point near death, all it really matters is not drugs and percentages, and homeopathy and everything, but just some amount of hope, hope to live because you have the right to. And you have the right to do whatever you can to live. Those critisising this (like your self) should really think more in a 360 view, be kinder to the feelings of the others, and think for once ‘I might me wrong!’
Deb O. said,
May 3, 2009 at 5:24 pm
Hi Constantina..I have created a temporary account for you to contact me at..You can write me at it and I will answer and you will not have to post it here..the new email is
funzy12@gmail.com
I pray that you find the miracle that so many have..there is no guarantee but a definite hope..I will wait for your email…
Constantina said,
May 3, 2009 at 5:43 pm
Thank you so much Deb O. I will contact you as soon as possible
jdc325 said,
May 4, 2009 at 6:52 pm
Panayiota, I’ve had a stream of incoherent posts on this thread from people making claims that they refuse to back up. None of them have engaged with the substance of my post, none of them have answered the questions I’ve put to them and some of their claims are, frankly, offensive bullshit (e.g., “it is in noones interest that you live on nodrugs, no one is interested in curing you but just in taking you money”). I can’t see what is so unkind about pointing out the offensive bullshit that is written on a blog. I find it strange that you are focussing on parts of my comments that you perceive as being unkind – and stranger still that you refer to my being an atheist. If your assumption is that atheists are unkind and unfeeling, then you may find that it is a mistaken assumption. I find humanists, for example, to be warm and compassionate people. Your other point seems to be that I am closed-minded and dogmatic, and that this means I am unable to admit that I might be wrong. I can assure you that nothing is further from the truth. I am perfectly happy to be proved wrong and if you feel that any part of any blog post on this website is inaccurate, misleading, or distorted then I will happily look into your complaint. Any inaccurate, misleading, or distorted information will be corrected – and the correction will be given due prominence.
Thanks for dropping by.
Constantina said,
May 5, 2009 at 11:29 am
Jdc325,
Thank you for giving me the chance to talk about such matters, I wish everything was as easy as it is in words but in actions things are quite strange, I have given answers, and if you require more information let me know and I will even scan if you want and send you information, I f you have library access then please, access medical records and try to give a go on Liver cancer brain cancer and renal cell carcinoma , try and find trials on metastatic patients, and then tell me of the bullshit I talk about..I wish you were right and that all that pharmaceutical companies cared about was people’s health and well being.. If it never happened to you to loose 3 loved ones in a year and wait for your turn as well because doctors have nothing better to give you then it is not my fault that you are trying to convinve anyone that your claims are right.. Another thing, I never claimed myself that polymva wokrs , I haven’t even calimed to be pro polymva, but I am defenetely telling you this , if it happens to you thing twice
jdc325 said,
July 7, 2009 at 3:08 pm
EDIT 7/7/09: Text from comment on another post copied here: